Sorry I am late in getting our weekly update out to you. It has been a busy week with Thanksgiving. Thanksgiving was a perfect day. We went to Mass in the morning and it looked like it might rain. When we walked out it was the most beautiful sunny day. We rushed home to [...]
Words cannot fully describe how incredibly thankful I am this Thanksgiving holiday. If you are reading this you have been following Mary Grace’s progress. She truely is a miracle. God is so good. What you may not know is that during the pregnancy I suffered a horrible depression. The last few months were incredibly difficult. [...]
WELCOME HOME MARY GRACE! What a great day. It was beautiful in every way. Last night we “nested” at the hospital. We got checked out once again changing the feeding tube and now giving Mary Grace her medicines. I thought the weekend would feel like eternity but it passed in the blink of an eye. [...]
God is so good and always faithful. He has worked many miracles for Mary Grace in her short life already. Thank you to all you prayer warriors for storming heaven on her behalf. Mary Grace is now a whopping 5 lbs 9 oz. You can practically see her growing. The EEG finally came back and [...]
I have been so spoiled the last few days. I have gotten to spend most of the day and night with Mary Grace thanks to Granny Linda and Paw Paw Jack! She is doing great and has been so alert. I can barely wait to take her home. It is going to be hard, though, [...]
So much news today I don’t know where to start! I guess I will start with the good news that Mary Grace’s physical therapist thought she did great today. A good improvement from the other day. Her speech therapist, however, thinks we need to slow down on her bottle feeding. She is struggling and there [...]
Wow! What a day. We made the big jump over to the Level 2 nursery. I was not expecting that just yet. This is one step closer to Mary Grace coming HOME. Now we just need to get her to eat on her own. She is working hard. She has been taking about half her [...]
37…that’s our new phenalbarb level. Below the therapudic level of 40 and still no seizures… oh happy day. Mary Grace is now in an open air crib and is doing great. It is all the more exciting when the nurses are talking about what a miracle she is. We knew that already but she continues [...]
Sigh…. long day, up and down… mostly up but I am tired. Today is Henry’s 3rd birthday. He was so excited this morning because he thought it meant that Mary Grace would be coming home today. Hopefully sometime soon, but not today. She had a good morning and was really alert the nurse said. So [...]
Words for the day: Infarction – area of tissue death caused by lack of oxygen; Thrombus – blood clot, can be the cause of infarctions. I don’t give these words to scare you… it occurred to me that when I told you the MRI came back and did not show the clot I did not [...]
